Where Every Child's Story Shines, Every Wish is Heard, and Hope Never Stops Blooming.

The Silly Lily Foundation is a 501(c)(3) nonprofit that empowers individuals of all ages impacted by chronic illness by delivering comfort, connection, and courage. Through inclusive books, care packages, hospital support, educational advocacy, and meaningful wish fulfillment, we help people feel less alone and more hopeful, proving that every story, every life, and every wish truly matters.

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What we do

  • Publish books specifically designed for chronically ill children, emphasizing themes such as resilience, emotional health, and self-worth.

  • Donates these books to chronically and terminally ill children globally.

  • Offers thoughtful care packages to children fighting cancer, chronic illness, or terminal illness.

  • Offers thoughtful bereavement care packages to parents.

  • Grants wishes for ALL ages. Sadly, most wish-granting organizations set a cutoff age of 18. However, at the Silly Lily Foundation, we believe that wishes should be granted regardless of age. After all, cancer, chronic conditions, and terminal illnesses do not discriminate based on age.

  • Supplies resources to schools to enhance their support and inclusion of medically complex children.

  • Distributes holiday gifts in hospitals, recognizing that cancer and chronic illnesses do not take a break during the holiday season.

    + more!!

About the Founder

Madison Holden founded The Silly Lily Foundation after navigating her own journey with complex chronic illnesses including EDS, CCI, MALS, MCAS, POTS, Chiari Malformation, tethered cord syndrome, Lyme disease, and more. As a former teacher, Madison combined her love for children, storytelling, and advocacy to create a foundation rooted in comfort, connection, and representation. Having experienced firsthand how isolating chronic illness can be, her greatest hope is to help others feel less alone and deeply seen.


Upcoming Events

May 25th

OceanPointe Church
Middletown, RI

Silly Lily will be speaking at OceanPointe Church about our mission and creating cards for children.

October 11th

Broadway Fair
Newport, RI

Silly Lily will have a pop up tent at the Broadway Street Fair! Come visit us and meet the author!

Sep 19th-21st

CureFest
Washington DC

The Silly Lily Foundation will be attending and tabling at CureFest.